If you haven't already heard about the Pineapple challenge, you need to look it up. In less than a week (on Saturday to be exact), 10 amazing people will be participating as a team in a 5 km obstacle course challenge. The best part is that it's a fundraiser for the Leukemia and Lymphoma Society of Canada. Oh, and they have to dress up in costumes and carry a pineapple along with them! So far, their team, Team Tori, has done an fantastic job of fundraising. They started out so strong that the organizer contacted them personally to find out what the story was behind their super successful start. And it didn't stop there. When last checked, they had raised $4,475 - putting them in second place in the Montreal teams! A huge thank you to Team Tori and also to everyone who has donated money to the cause.
Check it out at www.pineapplechallenge.ca
I hope that everyone participating has an amazing time. Maybe next year Jeff and I can participate too :)
Victoria did well with her last admission of interim maintenance. We had to share a room with another child, and unfortunately, he became sick with something that they thought may have been contagious. This meant that we got transferred to our own room, but because we had shared the room, Victoria was told that she had to stay in her new room to avoid any further possible spread. It wasn't "official" isolation but minus the gowns, gloves and masks, it might as well have been. When Victoria is at the hospital she LOVES being in the playroom. From the moment she wakes up, it is all she asks for. We do crafts, paint, watch movies and play with all the toys. It's where she meets other kids and gets to do some people watching too. She was very upset and it was hard for her to understand why she wasn't allowed. Instead, I brought the playroom to her. They may have had a lot of disinfecting to do later but if I could carry it to her room, I did :)
We tried to make the best of an understandable, but crummy situation.
The CHEO telethon film crew came by on Thursday to get some footage to use for their commercial. I'm not sure when it will air, but keep you eyes open for it and you might spot her.
Up next is her "delayed intensification" phase. This is supposed to be a more intense phase of chemo. She should start this in a couple of weeks. She has been on a few of the upcoming chemotherapies before, and they were all of the ones that made her sick. There are also a few new ones. It's expected that her counts will really drop, she will likely require more transfusions, and she won't feel that great. She will also be on more steroids. She hasn't had steroids since the first 2 weeks of her treatments but from what I hear it won't be fun. I'm expecting the worst and hopefully she'll get through it fairly well. Until then, we are going to try and enjoy the next two weeks. Right now, I think life is about as "normal" as it will be for another while.
Wednesday, 30 April 2014
Tuesday, 22 April 2014
Happy Easter
Happy Easter everyone!
Victoria has been doing very well. She is still in the "interim maintenance" phase of treatment where she has planned 3 night stays at CHEO. We are hoping to complete the 4th and last one this week. Tomorrow she will go back in for blood work. If her counts are good, she will be admitted on Thursday. She continues to be such a strong and brave little girl. While we have been there, she has been feeling pretty good. This means that most of our time has been spent in the playroom having fun. She hasn't been back in on a Wednesday so we haven't crossed paths with Boomer the sun glass wearing dog again.
Instead, two weeks ago, the kids had a surprise visit from some Olympians. Genevieve Lacasse and Brianne Jenner from the Canadian women's hockey team and Cody Sorensen from men's bobsledding came by. Victoria and one of her hospital friends spent the morning crafting their very own gold medals. Later, Victoria got to hold and wear Genevieve's gold medal !
Victoria has been doing very well. She is still in the "interim maintenance" phase of treatment where she has planned 3 night stays at CHEO. We are hoping to complete the 4th and last one this week. Tomorrow she will go back in for blood work. If her counts are good, she will be admitted on Thursday. She continues to be such a strong and brave little girl. While we have been there, she has been feeling pretty good. This means that most of our time has been spent in the playroom having fun. She hasn't been back in on a Wednesday so we haven't crossed paths with Boomer the sun glass wearing dog again.
Instead, two weeks ago, the kids had a surprise visit from some Olympians. Genevieve Lacasse and Brianne Jenner from the Canadian women's hockey team and Cody Sorensen from men's bobsledding came by. Victoria and one of her hospital friends spent the morning crafting their very own gold medals. Later, Victoria got to hold and wear Genevieve's gold medal !
We had a pretty low key Easter weekend. After having spent last weekend in the hospital and expecting to spend this upcoming weekend there as well, all we wanted to do was stay home. We had and Easter meal with Nanna and Grandpa and then spent the rest of the weekend alone. It's so nice to finally have spring like weather here. The kids really enjoyed playing outside and running around in the bush. It's been a very long and hard winter for us. With Victoria not really being able to be out in public, we just had to stay home. Our visitors were limited and we all had a lot of cabin fever. Spring always brings renewed optimism and new energy. With the nicer weather we will be able to go for more walks, walk around town and maybe even head to the park. Out in the open air there is much less risk of getting sick.
Here are a few more pictures from our Easter celebrations.
Egg Dying while Jake napped
Jake's new love: foil wrapped eggs
Chocolate monkey from Auntie Lisa and Uncle Mitchell
Their excitement when they find out this is a chocolate monkey!
Diving right in
This is Tori's excited face :)
Their new caterpillar friend. I hope Jake didn't think it was a chocolate egg...
I hope you enjoy spring as much as we are. I will keep you posted if anything is going on. Remember, no news is good news ;)
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