And so it begins

We have been told that planning will no longer be a part of our near future and today we got our first glimpse. Today was Victoria's first visit at the MDU. It's the Medical Day Unit where she will be having most of her out patient treatments. Our appointment was at 8 am and we were supposed to be there for at least a few hours. Plans for today included: blood tests, chemo, Q&A with the doctors and any transfusions, if needed. Plans did not include: spiking a fever, spots popping up on her tummy and visits from the infectious disease team of doctors. Plans did not include being admitted back into the hospital for about 5 days!!!
She had a small pimple-like bump on her thigh last week, but over the past few days this turned into a cluster of little red bumps. They don't know what it is. It doesn't look like the normal presentation of anything they are suspecting, but they said that people who are immunocompromised don't present like textbook cases of these sorts of things.The are treating her as if she has the worst case scenario. Worst case scenario being the chicken pox. They did swabs and blood cultures and we are crossing our fingers that it is something else :)
When were were on the oncology floor we learnt that chicken pox were a big deal. So much so, that when they admitted us, we weren't allowed back on the oncology floor. 4 North had been our home for almost 2 weeks. We knew the staff, it was recently renovated and really catered to kids with cancer. Now we are living on 4 East. It's kinda dingy compared to what we were used to. The nurses are still great but they aren't really used to patients like us everyday and it shows. They are trying, but everything takes a little longer. They looked at me like I was a little crazy when I insisted on ordering food  for her right before the kitchen closes, so that she can have her feast throughout the night. They have problems programming the IV pumps for her higher doses of medication, they had to go looking for the special gloves we need to change her diapers after she has received chemo etc.
Tonight Victoria is getting some melatonin before bed and some Tylenol for her fever- hopefully there's some decent rest in her (and our) future.
I feel the need to be living with a hospital bag packed at all times and a full tank of gas more so now than when I was expecting. We never know where we will be sleeping.