One week

Tonight marks the one week anniversary of Victoria's Leukemia diagnosis. Survivor had just finished, when the phone rang with our doctor telling us to take her to the hospital. In some ways, that day seemed like just yesterday and in others it seems like a very distant memory. I never would have imagined that Jeff would know what neutrophils were, or what intrathecal meant, but this is all just a part of our new life. I've come to realize that this is all of our new reality. It will affect Victoria, ourselves, and Jakey profoundly. It will affect a lot of you. Since this realization, I've decided to change the title of this blog from "Victoria's Leukemia Story" to "Our life with Leukemia". Don't worry, it will still be mainly about her - I know that's why you are all here. With that said, let's talk about my cutie pie!

The last couple of days have been hard. She wouldn't eat or drink a thing. She wouldn't play. The doctors or nurses couldn't crack her, she just kept staring at her IV pumps, barely even blinking. The dietician came in to have an ice cream picnic for lunch on her bed, still nothing.This morning she ate some breakfast. Today, clowns were blowing bubbles on her and it's like she didn't even know they were there :(
She wouldn't move, kept covering her eyes even though it was dark and then finally said her tummy hurt. I told the doctors I though she might be nauseous so they gave her more meds. It worked!
I forced her out of bed and made her walk. We checked out the newly opened play room on our wing but she wasn't interested. She just wanted to walk the halls. We walked and walked and walked. Its not a very big floor... everyone was laughing because she wouldn't stop. I think we walked for 45 min non stop. Her IV pump battery started beeping and we had to plug it in. She took a huge fit because she didn't want to go back to the room. We came back and had a visitor :) Tina stopped by with food, magazines and cookies. Then we had a Skype dinner date with Jake, Liam, Granny and Auntie Melissa and Auntie Jessica. Then we walked some more. She ventured into the playroom and didn't want to leave. She was practically running in the halls. Back in our room she finally had in interest her surroundings. We checked out the drawers, the cupboards and the bathroom. She played with her new toys. I read her stories, tucked her in for the night and watched this weeks episode of Survivor. Compared to how we all felt last Wednesday, we are in paradise!

She's back to being a silly pirate!