Monday, 25 November 2013

We're Home!!!!!!!!!!!!!

Sorry for the lack of posts. The past few days hadn't been great. Our highlight was a few visitors last Friday. Auntie Lisa kept her well entertained and even gave he a little mani/pedi with some kids friendly nail polish we got in the gift shop. Then the steroids kicked in and we were left with a nocturnal, starving monster. She spent her nights awake screaming for eggs, cheese or bread and butter. The hospital only serves eggs until 10:30 am so we were ordering multiple orders of several servings to stock pile for the night! Weird cravings and increased appetite are side affects of her transfusion.

Last Friday the doctors said that on Monday we could start talking about discharging Victoria. We were thinking that meant maybe Wednesday, Tuesday if we were lucky. We were shocked at rounds today when they asked if we wanted to take her home today! She needed a platelet transfusions and as long as she didn't have a reaction to it we were free. We had our visits from pharmacy, the dietitian, the social worker and our nurse case manager. After all of that, we packed up our bags, said goodbye the the room that had been home for almost 2 weeks and off we went. We know we will be back. There will be times where she will be admitted for planned procedures and then likely unplanned trips in.

My mom and dad had come for a visit today. As soon as we heard we were going home, they were out the door. They cleaned the house and had a delicious meal waiting for us when we got home. It  is so so nice to be under one roof together. While it was nice to come and sleep in my own bed, our house is very lonely place when it's empty. Tomorrow we get a special delivery: Jake!!!!!!!!!!!!!!!

On Thursday we have our first planned visit at the medical day unit at the hospital. She will be having some blood work, any transfusions she needs and her chemo.

If I don't post every day please just assume that nothing terribly exciting is going on. I know I had a few people worried with my lack of posting. I was just catching up on sleep.




Fed up with her hospital bed she decided to nap on Mommy's bed.






3 comments:

  1. Jess, I am soooo happy to hear you are all home now. Home, sweet home. I am even happier seeing pics of your lovely family and hearing that you are all well taken care of. Thank you for sharing, and don't feel bad for not posting! Get some rest Jess, love krys.

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  2. This is the best news ever!!!...I'm sure you are all thrilled to be back in your own home...:) In no time at all she'll be chasing her brother around!

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  3. So glad you guys are home and can't wait to come see the little princess! I bet she's excited to have her jake back ;)

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