Monday, 13 January 2014

Going home

Good news: We are being discharged today!!!!!!!!!!!!!!!!! I can't even tell you how happy I am and Victoria is even happier. We've known since Friday night that her chest CT was "markedly improved"  but we didn't get a definitive answer until later on Saturday. If Victoria could tell time she would be counting down the hours. She had a lot of fun taking her artwork off of the walls and windows last night, packing her bags, emptying the fridge and most of all announcing her departure it to everyone who would listen. It was a lot of fun but the whole time I've been worried that she will spike a fever and we would be told she will have to stay. It would break her heart. She knows that she will have to come back often for more medicine and that there will be times in the future that we will sleep over again but for now we all need a break. This morning we were up early due to the excitement. We had been in the playroom and had a sign made about going home before breakfast even came up.
She has a few more chemo injections to go and then we have to wait and see how her body responds. The next part of this phase of treatment is count dependent. That means that her platelets and white blood cells have to come back up to a specific level before they can give her more. She has been doing fairly well but they are lower now and it's not expected that they will be high enough by Friday (that would be the earliest they could start it).
Today we learnt how to give her her injections. The blood thinner that she is on will have to be given twice a day for some time so we will be doing that at home.
I can't wait to have everyone under one roof! She'll be back at CHEO on Wednesday and Friday for chemo but otherwise the plans for this week and the upcoming weekend are to stay put. Wish us luck!

Update: I didn't have time to publish this post before we left the hospital. We are now home and both kids are happily sleeping in their own beds. I feel like I never want any of us to leave the house ever again :)
I'll put up some pictures tomorrow, I just wanted to get this one up before another week goes by.





2 comments:

  1. We are beyond elated with such fantastic news!!!! We wish you all the luck in the world.♥

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  2. Jess, tears to my eyes! I am thrilled for you all to be together. You show us all that we have a whole lot to appreciate. Huge hugs and love. xoxox

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