Just wanted to provide you with an update on Victoria. All in all, things have been going quite well. We have been enjoying the summer and even though we aren't able to do any traveling and have had to limit our visitors, the summer still seems to be flying by. Victoria is almost done the last phase in her treatment before she starts her maintenance therapy. She has been tolerating the treatments well up until now, however, the intensity of the chemo is really starting to wear her down. Her immune system has been very suppressed, she has been more tired and nauseous and she has started to require platelet and red blood cell transfusions again. Unfortunately, today she developed a fever and had to be admitted into the hospital. When they checked her blood work today, her neutrophils came back at 0.0 - meaning she pretty much has no immune system or any way of fighting off an infection. She was put on antibiotics and will likely have to stay in for at least a few days.
We are hoping things will get a little easier soon. She has one more chemotherapy needle to do on Monday and then this phase wraps up. We are looking forwards the maintenance phase. She will still have chemotherapy, just not as much and she should have less frequent trips to the hospital. We are also excited because we will probably be able to take her off of her blood thinner injections. She will still need oral blood thinners but that's not a problem. She is a pro at taking any oral medications. Two less needles a day are going to make for one very happy little girl.
For those of you who didn't get to see the telethon and hadn't yet discovered the link to our story here it is. This is the 5 minute video they filmed to tell our story. We haven't yet acquired (or even seen) our live interview - the one where Jake decided to re-arrange the set and Tori just wanted to tell the world that I actually had makeup on...funny kids!
https://www.youtube.com/watch?v=lLwki9Ld8rs&list=UUQdmVr7jeIWxsQLJ97ZauyQ
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| Hanging out in Jake's bed |
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| Celebrating Jake's 2nd birthday |
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