Saturday, 2 August 2014

Stuck at zero

So, it's Saturday night and Victoria is still at CHEO. I'ts been one week since she was admitted for febrile neutropenia. This means that she had a fever when her immune system was very low. In Victoria's case, her neutrophils were 0.0 - yup that's as low as they can go! She was put on a course of antibiotics right away since her body cannot fight off whatever was causing the fever. The good news is her fever came right down (not like the last time, back in November, that lead to a 2 month stay and trials of endless medications). All we had to do next was wait for her neutrophil counts to start climbing. Once they start going up, then the hope is that her body can start fighting off things on it's own. Well, here we are stuck at zero one week later. Every morning we have been anxiously awaiting her lab reports only to be handed a sheet that says 0.0. Some of her other white blood cells have very slowing been climbing up by 0.1 each day. Her platelets are increasing and her red bloods cells are holding since the last transfusions. Her bone marrow is working. It's making "stuff", just not as fast as we would like.
If you could see her you would see that she is climbing the furniture, running the halls so quickly that we sometimes don't know where she is hiding (the nurses are being well entertained), eating so many cheese strings, yogurts and bowls of oatmeal that it's hard to believe she only weighs 13 kg and spending her days doing puzzles and endless crafts. She is sleeping well and she is not in any type of pain. We are not worried. It just sucks to be stuck here. She is having a lot of fun but she still wants to go home. She misses Jake :(
If by the end of Tuesday she is still stuck at 0.0, she will be allowed to go home. She will have had 10 days of antibiotics and if her fever doesn't return she's good to go.
Fingers crossed that tomorrow's the day!
Her beautiful new seal skin headband from another mother at the hospital

Refusing to remove her mask (even though she is allowed to outside) and not letting me adjust it so that she can actually see!


Can we eat out here tomorrow Mama?

2 comments:

  1. Fingers crossed you guys can go home soon :)

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  2. By far, the sweetest little face I have ever seen!

    ReplyDelete