Tuesday, 17 December 2013

Our sweet girl is back :)

Victoria has really been acting more and more like her old self. It's so nice to see her laugh and smile again. Granny, Poppa and Auntie Melissa came for a visit and the timing was great. It's nice when she doesn't tell people to go home...
She is still confined to her isolation room but she's started getting out of her bed again. She has a little chair that the Child Life specialist brought her and also likes to hang out on our pull out bed too. Actually, she would prefer to sleep on my bed and has told me to sleep in her's. Considering my bed is a third of the size of her's, it makes sense but I'm sure it would be frowned upon ;)

Thursday was a big day. She had a repeat bone marrow biopsy and lumbar puncture done. These were to see how well she has responded to her first month of treatment. From what the doctors were able to see, things look good. The specimens have now been sent off to John Hopkins for further evaluation. Early next week, we will meet with her oncologist for the results and to discuss the next phase of treatment. Fingers crossed for those results!

After waiting all day on Saturday (and not being allowed to eat in the meantime), and then being bumped by emergency surgeries, she finally had a CT of her chest done yesterday. Her chest x-ray had shown "something" but the doctors weren't sure what it was. Yesterday they concluded that it's likely all a reaction to her staph infection. She's already on a that medication so that may be why she appears to be improving. Without the imaging, you'd never know that was what was wrong. Her only symptom is a fever. Her oxygen is perfect and lungs are clear. She still gets about 1 or 2 fevers a day but that's a big improvement from before.


















 











2 comments:

  1. What a beautiful girl Victoria is. I can't believe how busy you must be and how much learning must be involved in all of this Jess and Jeff. Again, it is so nice to see your family there, I'm glad you guys have such amazing support. xoxo

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  2. The ''Sock Monkey Fever'' is contagious in Hemmingford !!!!

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