Sunday, 22 December 2013

New Port is in

Victoria had another port inserted on Friday and the surgery went well. To avoid putting her under two days in a row, they combined it with the chemo lumbar puncture she was supposed to have on Thursday. She has bounced back much quicker than the last time. She does complain of some neck pain but at least she's moving it today. It is, once again, nice for her to have her hands free. Also, because her arms aren't tied to the IV pole, she can now put it through a sleeve and wear her own tops. Thankfully, she has not had any fevers either. Her  "consolidation" phase of her treatment has started which means new chemotherapies and medications. So far she is doing okay. She had some nausea and vomiting today but really this week was the first time since starting treatment. It is expected that her blood counts will go down soon but for now she's good. Her hair is really starting to fall out now. She's lost most of what was in the front and also at the very back. She doesn't seem to mind in the least. It comes out so easily that she quite often, accidentally, pulls out a handful. Her reaction is to put it on one of her stuffed animal's heads to give them more hair :)
We've had a pretty laid back weekend, spent mainly watching movies and resting. Today, we did some laps of the ward and visited the playroom twice.
As for Christmas, we are staying close by. We have a room at the Ronald McDonald house, just across the parking lot, booked as of the 24th. It will be nice to avoid the drive to and from home, especially the way the weather has been. This way, we can also have Jake around for the holiday. There is no way he could spend a day at the hospital. After 5 minutes he takes to pushing buttons, pulling on lines, exploring the trash and trying to lick things...This way, one of us can visit with him for sort stays and head back over to the house when we've had enough.



Cheese in one hand and bacon in the other, what more could she want for breakfast?

3 comments:

  1. I love her breakfast choices!!! lots of protein!! and above all I love her spirit and pragmatic attitude toward the loss of her hair!! Love her forever!!♥♥

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  2. hi Jessica
    Hooray...the port is back in, fevers gone, and beginning consolidation: small but thankful blessings in the crazy world of childhood Leukemia. Thinking of you and your family this Christmas.
    leslie

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  3. It's amazing that she is dealing with the hair loss so well. It gives us adults some perspective...I hope you guys are having a nice Christmas morning Jess. Looking forward to seeing you soon. xxxooo

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